When parents or caregivers receive a diagnosis of a disease or disorder from a
physician, it becomes a catalyst of events that can lead to long, emotional, and
frustrating clinical journeys. Additionally, many physicians who make or communicate the diagnosis have little understanding of the disorder, relying heavily upon literature available online which can be challenged for accuracy, pertinence, or objectivity.
The Optimum care foundation is the premiere resource for information, clinical direction, treatment guidelines, networking, medical linkage, conferences, and online learning for patients, families, caregivers, clinicians, physicians, and scientific professionals with familiarity and expertise in different diseases, rare diseases, genetics, and co-morbidities.
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